Monday, August 4, 2014

Surgery Date, A Party, and No Oxygen

We have has some very strange weather for this time of year but surprisingly Junior is doing quite well.  He was able to go a few hours each of the past few days without oxygen.  The first day he would not let me take the tube off his face but it was not turned on.  Saturday I was able to sneak it off for several hours and he did great.  Yesterday he even went out to his buddies birthday party and didn't need to put it on once.
Happy Birthday to Shane!!! So hard to believe these boys are getting so big. When we met Shane he had just turned 8 and Junior was almost 6.  Junior had a great time at the party and we all had fun visiting and eating the wonderful food.
 My silly boy was excited to get to bring home a balloon.  
 A wide awake, giggly kid last night when he was supposed to be sleeping. 
Junior was so excited to make tubie buddy super heroes for his buddies just like his spider-man. 
Please keep Josiah in your prayers, he was not able to be at the party because he is in the hospital.  He had a bowel obstruction that required emergency surgery.  He is stable but needs lots of prayers.


I don't think I posted yet that we have a date for surgery.  Junior will have his trach surgery on the 13th of August which is just over a week away.  Please be praying for all of us, very stressful and scary.  I am talking to Junior about it a great deal and trying to prepare him for it.  A few days ago we gave his monkey trach surgery which Junior wasn't so sure he liked.  We then discussed how monkey no longer needed anything on his face.  No bipap mask, cough assist, IPV, or oxygen tube, now everything could be done through the trach without the masks Junior hates so much.  He did think that was cool so we then talked a little about him getting a trach like monkey.


Abby came by this weekend also, Junior hadn't seen her since she got back from my parents house so he was excited. 

She brought him gifts from grandma and papa as well as from her which he loved.  Junior loves the Andy Griffith show so was super excited with his Barney Fife t-shirt and picture. 
 

4 comments:

Jaimie said...

I'm just curious, do the doctors think junior will be a candidate for a passy Muir valve to let him talk at all? Or is it a wait and see thing? I know that's very hard for him but I was just wondering.

Junior said...

Hi Jamie, yes a passy Muir valve is an option and was one of the things I was careful to discuss with the doctor. Junior loves to "talk" and I don't want him to lose that.

Deana said...

I was going to ask the same thing...I'm glad he'll still be able to sing and talk.

I will be thinking of him and you!

Anonymous said...

i'll be thinking of you and junior as he gets his trach tomorrow.