Monday, August 25, 2014

Getting Organized

As I mentioned in my last post there are a lot of new things now that the trach has been placed.  Along with a huge amount of supplies Junior also now has some new equipment.
We may have to eventually get a larger cart for his machines because they no longer all fit.  His airway vest and IPV now sit on other shelves in the room and must be carried to where he is when he needs them.  
Here is a picture of the top of the cart now.  The machine in front is the portable vent which for Junior is being used as a BIPAP.  Once you have a trach you are no longer able to use a regular bipap machine.  Next to it is the humidifier which is attached to the vent by the gray tubing. Behind them is the mist machine which allows Junior's airway to stay moist while not on the vent/bipap.  
I added this small shelving unit next to Junior's bed for the basic trach care items.  The other items went on his large supply shelves after I removed the items he would no longer need.
These are Junior's regular medical shelves which we have been using for a few years now.  With the trach there were several items we could remove that he no longer needs and then his new supplies fit. 
 And one side of his closet with more supplies.  You might say we have a few medical supplies in our home.   I find it is essential that we stay organized with all the supplies we have.

When we arrived home on Friday Abby had put up signs for us.  So much fun.

Junior is struggling with some asthma but its not too bad.  Most definitely easier to manage with the trach.  Now when he is super congested I can go right in and suction to get him clear, I don't have to try to get him to cough.  He is also comfortable on the vent/bipap so it is not a battle to keep it on him when he needs a little extra support during asthma.
Sleepy kid having his treatments yesterday evening.

Of course at bedtime he was wide awake and giggling at his I Love Lucy show. 



1 comment:

Nancy H said...

Congratulations, Junior on getting through the surgery, recovery, and now....HOME!!! Wonderful to see you smiling!

Praying for REST for all of you as you adjust to life back at home with the trach.

Thank you, Heidi for giving us this glimpse into your lives. I now have a greater appreciation for the work it must take to get to camp.

Love,
The Hills