Merry Christmas

Merry Christmas, I hope everyone had a special day surrounded by family and remembering the true reason for the season.
Junior loves all things Christmas and loved all the excitement of the past few weeks.  Lots of crafts, Christmas movies, walks, looking at lights, and all the other Christmas fun we could find.

Here are a few pics from our Christmas.
Shopping which was a favorite for Junior.  He wanted to pick out gifts for others himself.

Yonder was a good sport and wore what Junior picked out for him.

  

Getting a special gift, this guy loves sharks

 

A visit with his buddy for some Christmas movies.

 

 

A Christmas eve hot chocolate from Dutch Brothers.  He loves there "not so hot" hot chocolate.  Only gets to taste it but thinks it is wonderful.

 

Christmas morning fun.
Junior and Yonder getting their stockings.

Junior thought getting shark breath in his stocking was very cool(its cotton candy)

 Goofy pics and gifts.

 

 

 

 

 Junior is a big Grinch fan so was very pleased when Abby got him this.

 

Junior got two joke books recently and I put a bunch of his favorite jokes on his communication program so he can tell them himself.  He gets a big kick out of sharing his jokes on his fb page. 

Here are a couple of his latest. 

 

Junior is doing really well at the moment and we pray it continues. Health is stable, no seizures, and a happy guy just loving life. 

On the feeding front Junior has now gone over 3 months, tomorrow gets us to 15 weeks only using the g tube.  No, food or meds going into his J tube at all.  We never thought this was possible but he is doing amazing and we have now started transitioning to bolus feeds which mean giving a certain amount all at once (like person who eats typically getting a meal) so he doesn't need to be on the feeding pump as much with the goal being not needing it at all.  Currently he is up to 4 ounces at a time, which may not seem like much but is huge progress considering Junior went 10 years without food in his stomach.  Please pray this continues to go well and we can ditch the GJ tube and go to a regular G tube in the very near future.   

Merry Christmas.

Happy Thanksgiving and Catching Up

Wow I am so behind on posting.  The holiday season always keeps us very busy. 
We had a relaxing Thanksgiving and just stayed home.

Abby came by for a couple hours first thing in the morning and she and Junior watched the Macy's parade and decorated a gingerbread turkey. 
 

 

 Then Junior opened his "Thanksgiving box" with fun stuff to use during the Christmas season(christmas pjs, an ornament, christmas movie, etc.) He was snoozing by the time I took a pic.
 
Even Yonder got pjs and an ornament

 

 Now for a few pics from the past few weeks.  We have had lots of rain so several days of low energy for Junior. 
He has had some fun doing Christmas activities though as well as getting out for some long walks between rain storms.

 Santa Yonder

 Junior's Grinch corner.  He loves the Grinch and was super excited to add a couple things to his Grinch collection during our walks to Hobby Lobby.

 He found a new friend.

 

Last weekend he had candy cane and Polar Express day. 
First it was all things candy cane, starting with reading the story of the candy cane.
 
 
 Then candy cane painting

 Then it was time for candy cane science.  He was figuring out which liquid dissolved a candy cane the quickest.  We had cold water, hot water, 7-up, and Vinegar.  He guessed it would be the 7-up and was almost right but fastest was the warm water.

 
We had a timer going and he had to look at the candy cane every few minutes to determine what changes were happening and which were dissolving the quickest.

 

 This was the candy canes afterwards showing how much they had dissolved. 

 Then on to candy cane measuring, had to get a little math in.

 Then he had to take a bag of various candy canes and graph how many of each color there were.

 Lastly he tasted the candy cane. 

 That would be a big NO, he was not a fan.

 Later in the evening it was time for the Polar Express.  First he needed to decorate his ticket for the train and we read the book.   

Yonder was soooo funny.  He saw me helping Junior color his ticket and got quite insulted.  He ran over took the marker from me and started helping his boy color.  Oops, sorry buddy didn't mean to take your job from you. 
  

Movie time. We paused the movie during the hot chocolate part so Junior could make his own Polar Express hot chocolate.

 
Putting the ingredient list together.
 
 Yummy, all ready to taste.  He loved it.

 Yonder thought since it had whipped cream it must be for him as well(no he didn't get any, though he did get a little plain whipped cream)

 

 Enjoying the movie.

 Yeah, a friend to watch a Christmas movie and of course be silly with.

 

  

Okay Junior we need to have another talk about this Christmas thing.  Heidi has gone way overboard this time with matching pjs.

 

 

Energetic group

 

Yonder loves getting his advent treat each day. 

 

My sis has been at my parents for a few weeks and Junior was excited to have her back home again.  She came by yesterday and brought him star wars toys and a joke book from grandma and papa. 

 

  

He has been sharing jokes on his fb page. 

Mellisa had an elf sneak home with her and it is trying to decorate the tree, lol.