Our Week

Wow I didn't realize I had fallen so far behind on updating Junior's blog.  He is doing well aside from a few asthma bumps with our recent wind. 

Last Sunday we had hoped to make it to church but the weather changed causing an AD flare up(increased temp, resps, hr) so we needed to stay home.  Junior decided he should still put on his church clothes for awhile.  He was so excited to wear his Star Wars tie for the first time and can't wait to actually wear it to church. 

 He continued his unit on Hippos this week and we are also including learning about Africa.

 Enjoying storytime on his ipad after his school session. 

 Tuesday we had an appointment at the DMV to get Junior his ID card.  Wow how can he be old enough to need an ID card?  I have never been so glad I made an appointment, that place was soooo busy.  Thankfully with the appointment we didn't even have to wait to get the paper work portion done.  Then it was time to have his photo taken and to say that was a challenge was an understatement.  In his chair he was too short for the camera and the sensor kept giving an error and not functioning.  I must say I was so impressed by the staff at the Lodi DMV.  A couple managers as well as other staff worked to problem solve the issue, one was even on the phone with the camera company trying to figure out what to do.  Finally after about an hour of trying they decided to see if we could "trick" the camera.  Since Junior's face was showing up on the computer and it was just his height not triggering the sensor they had me stand behind his chair.  It worked and after cropping me out the picture was just right.  Junior was a champ and quite patient with it all, after we left I told him I thought he most certainly deserved a Dr. Pepper treat and he agreed.

Yes that is a medication syringe full of Dr. Pepper, it actually worked awesome and gave me more control to be sure he only gets a couple drops at a time.   He was laughing so hard when I showed him the "Dr. Pepper medicine". 
 

Mr. Silly watching his movie and giggling.  I thought he was just laughing at the movie but then saw his mouth motion and realized he was wanting more Dr. Pepper.  He has a distinct motion he does when he wants a taste of something(most wouldn't notice it but if you are around him you figure it out in a hurry)

Watching a movie, he was having so much fun, I tried to sneak a pic but he caught me.

Yesterday Junior's new lift arrived.  We of course have been using a lift for many years but his motor was over 8 years old so needed to be replaced.   For those newer to our blog who haven't seen the videos or pics of his lift in action here are a few pics.  He has a voyager lift and portable overhead system.  We live in an apartment so mounting something on the ceiling was not an option.  With the portable system we have a leg on either side of the room.  The leg unscrews and is held in place by pressure.  A track then runs between the legs.  This allows us transfer Junior to his various equipment.  In the pics he is moving from his recliner into his chair so he can move to bed. 

 He loves his lift and thinks of it as his personal roller coaster ride. 

 A few moments of video showing me lifting him out of his chair to transfer him to bed. 

Today Junior is helping me finish up feeding tube pads for our summer camp fundraiser.  He loves to "help" me sew.   Can't believe camp is coming up so quickly and will be here in less then 2 months.  If you would like to help Junior go to camp you can donate to his Joni & Friends Family Retreat account HERE.(click the link that says Family Retreat- Mission Springs 1 2016).   Any amount is appreciated and will help us reach our goal.