Shriners

Today Junior had his Shriner's appointment to pick up his new resting (night) hand splints and have them fitted.  We got there a few minutes early and then found out our appointment time had somehow gotten changed so we would have about an hour to wait. 
The kids didn't mind because the orthotics dept is on the second floor where there is a wheelchair accessible play ground area outside on the roof. 
We spent a few minutes out there before the wind picked up and we had to go in. 

  
There was still plenty of time before we would be seen so hunted down some more fun.
Video games and then coloring a Star Wars picture, with markers of course. 
 
 
The fitting for his new hand splints took a little while but Junior had his ipad to keep him distracted. 
It will be awhile before he works up to wearing the new splints all night but it looks like they are going to work.  They heated them, then got them just right and cooled them so they held the correct position.  If he has any growth or hand/wrist changes they can again be heated and remolded.  He wore them for a couple hours today and will do the same tomorrow and if that goes smoothly we will increase by one to two hours a day until he can tolerate them all night. 

 I have a totally wiped out boy tonight who wanted to get in bed and watch a movie the moment he got home.  He did really well all day and in fact much better then we expected.  Having him on the vent while in the car has ended up making a huge difference on how he tolerates outings.  Today with the weather change we knew it could be an extra tough outing for him so also brought along his mini weighted blanket(it is what you see on his lap in the pics).  I folded it and laid it across his lap and it definitely seemed to help him cope and be able to enjoy things even at a doctors appointment.