Saturday, September 27, 2014

Our Week

Wow I didn't realize it had been so long since my last post.  Life stays very busy and I don't have a lot of down time for blogging. 
Junior has had an up and down week.  The smoke from the fires has caused some major issues which make me so very thankful he now has the trach.  He has been able to spend extra time on his vent/bipap with which has been a huge help.

Lots of extra naps so I got a little sewing done.  Many of Junior's shirts are too snug around the neck and rub on his trach.  These are some of his favorite shirts so I didn't want to just get rid of them and decided to try adding a little v-neck to them.  The cloths are what we use when he coughs and I wanted them to look "cooler" for when we have to use them when out. 
 The awesome Beads of Courage program that Junior is part of.  He got his new beads from his hospital stay this week and loved stringing them.  He is so proud of his beads and how they help tell his story.  Each bead stands for something medical he has been through.
 Yesterday was just one of those days.  Weather was changing so he had a headache and every little thing caused tears and melt down. Today is going better so far and hopefully things will calm down.  

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