Crazy Weather

We had rain and dark clouds most of the day which made for a very quiet, sleepy kid.  So  thankful that sleepiness was the extent of his weather reaction and no seizures were triggered. I got results to his labs and they were normal.  So it looks like the low grade fevers are from the seizures and this crazy weather.  He could also have been dealing with a virus.  I woke up sick today so may have caught whatever he had.
This is what much of the day looked like for Junior.  Bipap and movies(along with lots of treatments).

 On Tuesday I took a few minutes and made one more t-shirt onesie for Junior.  I had gotten these youth size onesies several years ago and Junior had long ago out grown them.  I found that they were perfect to use to make these t-shirt onesies for him but now I cannot find a place that sells the youth size.  I would even be happy to find size 4 T to try this with.  Does anyone know of a website or store that sells the 4T or larger size and doesn't charge an arm and a leg for them(I checked walmart, Target, Kohls, and babiesrus and found nothing bigger then 24months). 

We have been trying to figure out Junior's boardmaker program for awhile now.  It quit running on his computer and I was so frustrated since it would have been so nice to have for many school things.  I finally decided to try getting an external disc drive and see if that could be our issue.  Sure enough the external drive ran the program just fine and Junior was so excited to have it up and running again.  I set up his ipad boards so he could tell me what he wanted to tell grandma and papa and then I used boardmaker to copy what he told me.  I could then put it into an email.  He was sooooo proud to be sending his very own email using his symbols.  Proloquo2go(on the ipad) and boardmaker(computer) don't always have the same symbols(actually I have been much happier with the ipad symbols) so though it is what he said the symbols are not always an exact match.  Here is his note to grandma and papa(just took a pic of the computer screen to show it).  

 He was also so excited to write his very own thank you note to the amazing family who sent him the sensory table.  I will be sure to get pics of him using the ipad to tell me what he wants to say next time. 

  
This very moment as I was writing this post I received an email with some very sad news.  A very special little boy earned his wings tonight.  Such a sweetheart who left footprints on so many hearts.  My heart breaks for his mom tonight and I pray God wraps her in His comfort and love in the days to come.  We love you B and your legacy will live on in the many, many people who have been touched by your life.  Every time I see a Cars movie or toy I will think of you and your mom.  Fly to Jesus precious boy. 

Hug your kids tight tonight and let them know you love them.  Life is so fragile and we are not promised tomorrow.