Happy Easter

I hope everyone is having a blessed Easter.  He is risen indeed.

This has not been the Easter we had planned but I know God's hand is in this and He has a purpose even in our trials.  We did not make it to church and instead of Easter things I am doing laundry  and just put a pot of soup on the stove while I keep a close eye on Junior.

Yesterday Junior slept in late and then woke up and went right into a seizure.  With the big storm moving in I knew this might happen so had been watching for any seizure signs.  Poor guy bit his tongue while having the seizure so added to the extra saliva his seizures create it was a mess. He then slept a few more hours on his bipap and seemed to be recovering quite well.  Then late in the afternoon the seizure monster reappeared and did its best to stick around.   It was a long seizure and took his heavy duty emergency med to stop it, something I haven't had to give in at least a year(probably closer to two).  One of those times when 5 minutes felt like 5 hours, when your child is seizing it is as if time has stopped, every moment seems like an eternity.   He was chewing on his tongue during this seizure so of course we had more blood which made it that much worse.  Once the seizure finally stopped I got his bipap on him along with his vest, nebulizer, and extra oxygen. I also grabbed his "go" bag and put it by the door in case the seizures started back and we needed to head to the hospital. Soon after the seizure a huge storm hit and we had thunder, lightning, and heavy rain.  This is not something that is common where we live so it could have been the cause for the seizures.  I pray that is the case and nothing else is going on. 
He is a very tired guy today and is getting lots of extra treatments.  Because of all the blood yesterday, when he bit his tongue, I am watching for any signs that he may have aspirated.  He has a low grade fever now but that is common for him after a seizure so I am not going to get too stressed about it yet.   We will talk to his doctor tomorrow to see how to proceed. 
Please keep him in your prayers. 

In between seizures yesterday I was working on some onesie t-shirts for Junior.  He needs an undershirt under his back brace and regular undershirts ride up get wrinkled under the brace causing red marks.  A blogger friend shared her onesie t-shirt idea and I love it.  It was perfect for Junior.
I linked to her tutorial and shared how I made Juniors on the adaptions blog.

  

Junior was awake for a little while this afternoon so enjoyed checking out his Easter stuff.  He was still pretty out of it and just wanted to hold his car and go back to watching I Love Lucy.