Okay all my wonderful blog readers I am needing ideas to help make treatment time a little more fun. During the vest and nebs Junior can watch t.v. but during the half hour hand percussion part(4 times a day) he gets bored and unhappy. It has gotten to the point where he starts crying or complaining the minute it is time to start that part. Television is not a good option because he has to be positioned multiple ways to get to each area of the lung so can't always see it and then really gets upset. I thought about a book but I can't read and do the percussion at the same time.
I need something he likes that will keep him distracted but can easily be moved so he can see it.
I don't want treatment time to be miserable for him, he has to have them too often, I have to find a way to make them fun. I am trying to come up with several things that he only gets to do during those times so he will be excited to choose his treatment activity.
No post is complete without a giant Junior smile, here he is goofing around during exercise time.
Junior is doing much better and now is just dealing with some prednisone tummy pains.
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9 comments:
LOL, he is so happy!
TV is our distraction of choice with Dakin, but he's smaller and easy to manuver...hmm. I don't know! I'll think about it!
Does he like lights or maybe I should ask do they cause seizures? Blinking ones that is?
Anyway how bout one of those light show things....Jophie has one that can be put anywhere on the walls/celing anywhere at all. You could aim it everytime you reposition. Can you make the room dark enough for him to see them? Jophies you can change out little plastic slides to do different shapes/animals/colors and they move around all over the place as it turns.
He also has this little baby mobile of sorts only it doesn't attach to the bed. It sits on the any flat surface. You wind it up and the globe spins giving you the same effect. The music is relaxing/calming and as the globe turns the different animals/trees/clouds/shapes appear..
Soft soothing music?
We also have what we call a sleep machine. Jophie has used it from birth. We have upgraded it when our first one had an accident with a bubble humidifier in the PICU..LOL
With the sleep machine you turn it on then choose from different sounds. Ours has rain/storms/summer nights/ocean/train/heartbeat and a few others I can't recall right off. There is also a little pretty blue light that you can turn on while it plays.
How bout a book on tape? We use those ALOT. You ever heard of Mark Lowery? He has the CUTEST series of books. We have 3 which could be all he's done so far? I'd have to look. Anyway its based on a little mouse called Piper the Hyper mouse. ONe is Christmas/One Piper goes to the circus and the other I can't recall. My brain is old and fuzzy ;0 We generally prop the book up/put headphones on Jophie so he's not distracted by any outside source like the tv/people talking/phone ect. The pictures are SOOOO bright/colorful fun! If you know Mark you know how animated and hilarious he is!
If I think of somethign else I'll be back ;)
Good luck!
Trina and Jophie
How about some favorite music that's upbeat? Or what about the doggy that dances and moves? Or a story on CD? I am not too creative so that's all I've got! :)
Talking books...that is what our library has here in Australia ...on CD or Tape...you can borrow them from the public library so they dont get too expensive to buy a new one each time.. it is the story to music with sound effects etc... the best idea i can do other than music on an ipod with his own earphones maybe... which will allow him to be moved without too much interruption and distraction...thus the time will go fast for him
Go Go Junior...what a Hero.
Nettie beat me to it - I'm pretty sure that audiobooks are your answer. He will just about be reaching Harry Potter age, perfect! Incidentall, I wanted to ask about Junior's access to communication, has he had an AAC assessment recently? I can see him doing really really well with switch activated stuff these days.
Junior gets a kick out of you exercising, you could pop on some crazy music and do just that, it be good for you 30 mins is awesome cardio and he loves it... or have you seen the cars that race on the walls? you could get him one of those, and have it adapted for a switch.
My first thought is music, but it looks like that's what everyone else has said too. I'd be happy to send you a copy of Chloe's favorite tunes! Chloe, for some unknown and unfortunate reason, does not like to watch TV, movies, anything. It is pretty much impossible to entertain her without sitting down and reading her a book. She does okay with blogging because she likes the pictures, but only for awhile. I know entertainment can be hard, but music definitely helps. Really, let me know if you want the cd.... Chloe is very partial to this selection of tunes ;O)
I wish I had ideas but you are much more creative than I could ever be.
Hmmm, ok so this is what 1st came to mind that could either excite him or put him to sleep. We have a plug in aquarium that Isaac loves to stare at and touch the fish. There's something mesmerizing about it.
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